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- is an organization whose purpose is to improve health through medical genetics. By using the ACMG website, one can find genetic services and providers around the United States.

- a professional genetics organization that provides education to the public.

- a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.

- an international coalition of individuals, and professional and genetic support organizations that are working together to enhance the lives of everyone impacted by genetic conditions.

- summarizes the protections against discrimination based on a person’s genetic information in health insurance coverage and employment.

- new Genetics website at the National Library of Medicine for families and health care professionals.

- a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them.

- a repository of web-based professional education resources.

- a collaborative effort of the National Institutes of Health, The Office of Rare Diseases Research, and the National Human Genome Research Institute to help people find useful information about genetic conditions and rare diseases.

- a service of the U.S. National Library of Medicine and National Institutes of Health. Health information from the world's largest medical library, the National Library of Medicine.

- celebrates the beauty of human difference and includes photos of individuals with genetic conditions.

Benefits of a Genetic Evaluation: /

Baylor Adult Genetics Clinic - provides evaluation, genetic testing and counseling for adults. Phone: (713) 798-7820.

- Children are referred for many reasons including developmental delay or a suspected genetic condition. The first visit includes a detailed family history and a physical exam. When a diagnosis is known, families are counseled about the pattern of inheritance, complications and prognosis of the condition, risk for future pregnancy and reproductive options. Phone: (832) 822-4293

Information Regarding Telemedicine Appointments at Texas Children's Genetics Clinic

Ben Taub Hospital Prenatal Genetics Clinic - provides genetic evaluation and counseling for prenatal patients. Phone: (713) 873-3674.

- Phone: (832) 826-7500, option 4

(National Society of Genetic Counselors)

(American College of Medical Genetics)

- supports awareness, advocacy, and science and directs families to local resources and research studies.

- family support, awareness/advocacy, sharing research news, the statewide chapters broken down by region, eight in Texas, four in the southeast: Houston, Cypress, Nederland, Webster.

- this organization aims to improve the quality of life of those affected by developmental disabilities by increasing resources and providing information about Applied Behavior Analysis.

- advises and makes recommendations to the Texas Health and Human Services Committee's executive commissioner to ensure that the needs of persons of all ages with autism spectrum disorder and their families are addressed and that all available resources are coordinated to meet those needs.

Research Studies:

- is a core project and a new resource of the Simons Foundation Autism Research Initiative that will provide the scientific community access to genetic and phenotypic information on 2000 families.

Texas Children’s Hospital:

Autism Center: (832) 822-3704

Neurology Clinic: (832) 822-3554

: (832) 822-3400

: (832) 822-4293

- the leading voluntary health organization in Alzheimer care, support and research. Phone: (800) 272-3900

Baylor Alzheimer's Disease and Memory Disorders Center - offers a listing of local, state, national and international resources.

- a national patient advocacy organization dedicated to ending the suffering caused by colorectal cancer.

- offers healthy eating tips.

- a not-for-profit voluntary health organization funded by private contributions that are committed to reducing disability and death from cardiovascular diseases and stroke.

- a not-for-profit voluntary health organization funded by private contributions that are committed to reducing disability and death from cardiovascular diseases and stroke.

- a source of information and support to families and individuals affected by any rare chromosome disorder.

- education, advocacy, information, and support for all those affected by a rare chromosome disorder.

-provides information, advocacy and support concerning all aspects of life for individuals with Down syndrome. Phone: (1) (800) 232-6372.

- offers information, support and advocacy.

- an online tool will help you build your family health tree.

- to find national, state, and local information for helping individuals with mental health issues like the anxiety often seen with Fragile X.

- to find national, state, and local information for helping individuals with mental health issues like the anxiety often seen with Fragile X.

- serves people with a wide variety of hearing disabilities.

- a non-profit health organization dedicated to saving lives and improving the quality of life for individuals and families affected by Marfan syndrome and related disorders.

Crisis line numbers:

Support4Hope: (1) (800) 692-4039; (1) (800) 936-8097; (1) (800) 793-2273

(1) (800) TALK

Phone numbers for help for children with developmental disorders:

Harris County MHMRA: (713) 970-4444

Gulf Coast Center (Brazoria & Galveston): (877) 226-8780

Texana Center (Fort Bend, Austin, Waller, Colorado, Wharton, Matagorda): (281) 342-0090

DePelchin Children’s Center: (713) 730-2335

����������� and Texas Children's Hospital Clinics:

Psychology Service: (832) 822-3700

Psychiatry Service: (832) 822-3750

Cardio-Facio-Cutaneous (CFC) Syndrome: is a support group for families and others whose lives are touched by this very rare syndrome.

Costello Syndrome: is an “e-grass-roots” parent support group that shares information about Costello Syndrome (CS) with parents and health providers around the world.

Blue Bird Circle Clinic Rett Center at ����������� - is involved in three major activities: Caring, Education, & Research. Phone: (832) 822-RETT (7388) Toll-free: (1) (888) 430-7388.

- a national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families.

- includes a tutorial about seizures and epilepsy.

- a nonprofit organization that provides support and information to people of short stature and their families.

- supports OI research, offers education for those living and working with people with OI, builds public awareness, and offers mutual support.

- provides facts about sleep, sleep disorders, treatments, and services. Find accurate information and the latest news from the leader in sleep medicine. The website includes an online discussion forum. In the forum, you can interact with other visitors to the site.

- NSF is dedicated to improving public health and safety by achieving an understanding of sleep and sleep disorders, and by supporting sleep-related education, research, and advocacy.

-  to improve the health of babies by preventing birth defects, premature birth and infant mortality. We carry out this goal through research, community services, education and advocacy to save babies lives.

- serves adults and children who live with the challenges of spina bifida (English/Spanish).

- promotes the prevention of spina bifida and enhances the lives of all affected.

- information for people with intellectual and developmental disabilities.

- Social Security website.

- newest information on insurance coverage choices.

- information about access to healthcare.

- aging, disability, and mental health services

- special needs resources.

- Medicaid & CSHCN information.

- quick SS disability determination categories.

- Working to ensure that individuals with genetic disorders and their families have access to quality care and appropriate genetic expertise and information 

 (English and Spanish) - Support and information for families that have a child with disabilities and special healthcare needs.

- Supports families of children of any age with disabilities, chronic illness or other special health care needs and provides trainings and conferences across the state.

- a national nonprofit voluntary health organization located within the Children's Hospital of Philadelphia.

- a non-profit organization that was founded by parents in an effort to bring awareness and support to this rare and under-recognized condition.

- comprehensive resource for people and families living with Williams Syndrome as well as doctors, researchers, and educators. Phone: (1) (800) 806-1871. South Texas Region Representative: (713) 417-9418.